SIMON needs HELP! A new treatment option has become AVAILABLE. 🎉🎉🎉 Simon has Sanfilippo Syndrome. It’s a terminal, neurodegenerative rare disease, and causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die, often before the second decade of life. Because of its neurodegenerative nature and multi-system impact, Sanfilippo Syndrome is often called “childhood Alzheimer’s” or “childhood dementia.” Children with Sa
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